Author: PDA Parenting
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Q&A – Fact sheet for Siblings
Hi all, I hope you are having a good start to the week. Following on from the previous post on the subject of siblings, there is a follow up fact sheet to discuss PDA further. Some of you may find this a useful resource and I have decided to send out the link as…
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PDA Thoughts – Recognising the Challenges Faced by Siblings
Recognising the challenges faced by being a sibling of a child with PDA (or of an additional need in general), is something that many of us parents discuss frequently. I know in our household it is a very sensitive subject. How do we parent siblings when one may be neurotypical and another has an additional…
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PDA Thoughts – A Case Study
The following document has been written by a parent of a child already diagnosed with PDA and edited by Jane Sherwin (author of the book Pathological Demand Avoidance Syndrome – My Daughter is Not Naughty). This family has been a great support for many families (like ours) and are active in their campaign for a…
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1,2,3 Our Journey So Far
I have been asked quite regularly, particularly lately, how did I know that something was not ‘normal?’ In better terms, how and when did I realise my daughter was not developing in a neurologically typical way? I have been ‘avoiding’ this part myself as I feel that it’s such a long story, where do I…
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Campaign for PDA Recognition in Herts
Hi all Parents, Carers and Professionals There is a campaign that is starting up in Hertfordshire (with the intention to progress nationally) in order to get PDA recognised as a diagnostic profile. A survey has been generated by Sally Russell and is so far highlighting the need for a better diagnostic criteria to be used…
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Does she have to stay Frozen?
I know why Elsa wears her gloves, I wish I had a mama pair too. Those gloves not only prevent the queen from hurting people she loves but they keep her safe from being frowned upon; “Elsa, don’t let them see the monster you really are.” A metaphoric barrier which protects her from society –…
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Dear Sister
Dear Sister, I’m sorry that I hurt you. I don’t know why I do it. If I knew then maybe I could stop. I always hear you ask Mummy why do I get angry and I listen to what she says. You even try to help me – you bring rabbit and say this will…
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The Mum
I am The Mum. I am the mum who tries her best. The mum who tries to get her kids to school and dressed in their uniform, their teeth brushed and their hair tied up. Book bags packed and reading records filled. To have play dates with friends and swimming awards reached. To hold her…
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Santa’s New Chimney…PDA and Dealing with Changes
We recently moved house and changes are not usually met well in our household, let alone life-affecting moves. People tell you that moving house is one of the most stressful things a person can go through, but we went through this when our latest addition was two weeks old. So, not only did we have…
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Just Another Bedtime… Life in the Fast Lane
Parenting a child with PDA is like being thrown backwards into a speeding motorway, weaving through the traffic for fear of having an accident head on, always preparing for the next move. Nobody tells you it’s going to be like this. It wasn’t in the parenting manual. I’m not ready. Red, amber … I’ve got…