PDA & Autism – Trusted Further Links
Curated resources, lived-experience blogs, professional training, and research.
Listening to many voices helps us grow. Below you’ll find hand-picked links for Pathological Demand Avoidance (PDA), autism, and neurodivergent family life—from official guidance to on-the-ground insights. Everything here has been helpful to us or our community.
Official & Charity Resources
Listening to many voices helps us grow stronger and here are a few suggestions that we have personally found useful.
PDA Society
Information, training and support for PDA people, parents & carers, and professionals.
Lived-Experience Blogs & Voices
Steph’s Two Girls
Family life with a type of Autism called Pathological Demand Avoidance.
A Boy Less Ordinary
A window on my bumpy journey as a parent: helping my neurodiverse son navigate the world, empowering myself with knowledge and redefining my understanding of parenting.
Sally Cat PDA
A blog about adult PDA with illustrative memes. Pathological demand avoidance is classed as an autism spectrum condition
Me, Myself and PDA
Hello, my name is Julia and I’m an adult living with a diagnosis of Pathological Demand Avoidance (PDA).
Riko’s Blog
Hi and welcome to Riko’s PDA journey. My name is Riko Ryuki and I have an invisible disability called Pathological Demand Avoidance.
Alice Running
Alice writes about autism to create space for autistic voices.
Professionals, Training & Support
Positive Assessments Support and Training (PAST)
Support and advice for families of neurodivergent children and teenagers
Odyssey PDA Support Group (formerly the South Bucks PDA Support Group)
Connecting PDA families through peer support (both online and in person) as well as providing resources and information via a regular newsletter
Jodie Clarke
Hi, I’m Jodie. I am independent specialist working with autistic children, their families and their schools.
inTune with PDA – Kristy Forbes
Autism & Neurodiversity Support Specialist. We are passionate about RADICAL ACCEPTANCE & the celebration of neurodivergence.
The PDA Space
Nicola’s mission is to spread awareness of PDA and help families create a calmer more compassionate home to live in.
Life Aspland
Empowering parent carers with tools and support. Also able to register for a free parent carer magazine called KinToa.
https://lifeaspland.com/
Research, Guidelines & Case Studies
PDA Society – Good Practice and Insight (various documents)
PDA Society – All case studies
Extreme Demand Avoidance Questionnaire’ (EDA-q): The ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q) was developed to measure behaviours reported in clinical accounts of extreme/‘pathological’ demand avoidance (PDA). The questionnaire allowed these traits to be measured consistently for research purposes. The EDA-Q should not be considered a diagnostic test. PDA Society and link to Liz O’ Nions – EDAq demand avoidance questionnaire
Media & Articles Featuring PDA Parenting
Special Needs Jungle – 70% children with Pathological Demand Avoidance missing out on education
Hemel Today – Hemel MP back’s mum’s Call to Action
BBC Sounds – Hemel Hempstead mum’s book on autism
Disability News Service – Article on PDA and Parent Blame
Life AsPland – podcast on motivation, productivity and PDA
Hemel Today – Hemel mum’s blog on autism up for national awards
Hemel Today – SEND blog by Hemel Hempstead mum nominated for two BAPs awards
My Family Your Needs – Living with PDA in lockdown
Tools & Products
The Amazing Autistic Brain Cards
A review of a practical and interactive resource for helping children understand autism and celebrate neurodiversity.
View product here.
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