Category: SEND
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To blog or not blog – that is the question?
When I first started writing posts I pretty much did it for a release because my life felt so tough. I felt so disconnected from everyone that I needed to find a tribe who could understand and help me with what I was going through. Since then, I have learnt how to format posts, understand…
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The Inhospitable World
For many parents on holiday, this picture would be an average photo they would take of their child playing on the beach. For me, it is loaded with so much emotion, that you simply wouldn’t see. Having a child with autism can be more challenging when trying to do typical family outings – for many…
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Top tips for parents before a SEND or EHCP tribunal
The clock is ticking and you have a time limit to get your SEND tribunal appeal lodged before your chance expires. Often, for parents like me, we have a tendency to rush through and send it before we have had enough time to put forwards our grounds for appeal with the detail it requires. But…
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SEND National Crisis
As many will know already, tomorrow there will be a series of organised marches around the country, designed to peacefully protest about the current SEND national crisis. Thursday 30th of May has been marked on the calendar for many individuals, families and professionals affected by the continuous cuts and lack of resources available to support children,…
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Stop!
There are moments when I just need this all to stop. Last week I had one of them. It’s hard enough to push through when you are living in a war zone, the wear and tear it takes emotionally, when it really is just all-consuming and forever unrelenting. But it’s nothing compared to fighting a…
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Safety Blanket
*Warning – potential triggers or upsetting content in this post* We all have our safety blankets. Sometimes we don’t even know we rely on them until they are suddenly pulled away from us and our comfort has gone. My eldest daughter, with PDA, had a cousin of the same age who she went everywhere…
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The System
The system is broken. Full bloody stop. We can fight amongst ourselves and try our best to get those individulal wins, but we are just lone warriors – trying to wage our own version of a resistance. It just is one, big losing battle. A war with pocketfuls of parents, here and there, who are made…
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Our wings should not be broken
It is not a disability that prevents the ability to fly. We should not be disadvantaged because we need more help. We should not be disadvantaged because we need more time. We should not be disadvantaged by not having the same rights. Time and time again children crumble whilst parents desperately fight for the equality…
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Potential Kids and a New Year Miracle
Potential Kids are looking for a miracle as 2019 begins. At the end of last year they were faced with their biggest challenge to date. But before I explain I want to talk a little bit more about this unique service that they provide for families locally. I did review our first stay and play…
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Sleeping Beauties and Simple Wishes
On New Years Eve, as I lay down with my eldest daughter to help get her to sleep, I asked what her new year’s wish would be – you certainly can’t ask a demand-avoidant child what her new year’s resolution would be! Going to sleep over the last few years has been one of our…