Why do you shut me out? Why do you shut the world out? What are you so afraid of?

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I know why Elsa wears her gloves, I wish I had a pair too.

Those gloves not only prevent her from hurting people she loves but they keep her safe from being frowned upon, “Elsa, don’t let them see the monster you really are.”  A material barrier to protect from society.  I wonder if Disney would mind sending me a pair?  It takes her ever faithful sibling to ask, “Why do you shut me out?  Why do you shut the world out? What are you so afraid of?”

I have studied my daughter and realised that she succeeded in shutting me out; she hid her true self away and it was only when she started school that her identity was ever exposed.  Under the microscopic eye of being in a restricted and uncontrollable environment, her gloves fell off and she allowed all to see the pain she was in.  She masked her PDA and often does so in certain places or with chosen individuals.  I have since learnt that many children with learning difficulties mask their disability, not just children with PDA.  This often frustrates parents as professionals may not take their worries seriously.

My daughter keeps her gloves on until she is too anxious and the cracks begin to appear.  Once she’s had exposure, there’s no going back.  I try to steer her to a safe place where she can open up and recover from the distress.  As you might have guessed, she no longer shuts me out.  I’m her true ally now and having followed the PDA strategies for parenting, she feels safe with me.

I’m trying to look at it through her eyes and see why does she feel the need to shut the world out?  I’ve worked out that people don’t understand her – she is confronted by a stream of frowns and stares and being told to do it differently.  Maybe it’s the added baggage of having me: an embarrassed mum forever apologising behind her.  That probably adds to her view of self-loathing.  Sometimes I dread to go out for fear of being judged at how I handle a situation.  This need to shut out has rubbed off on me and I often feel like I just want to cocoon away.  I’m too scared to just ‘let it go’, how can I teach her to?

Maybe it’s because we have also been shut out by so many people that she feels an inability to show her true self.  To be told that nobody is willing to work with her on a one to one basis cuts deeper through me than a knife.  She may not have heard those words, but once uttered they have an impact on the whole family.   I’m the first person to admit how complex her needs are but I will be the last person to give up on her.

When Elsa’s gloves come off in Frozen we as the audience still love her as our heroine.  We see the beauty not the monster – more importantly we understand when she is not in control; she doesn’t choose it that way.  Maybe my monster has learnt to cope this way in school and rarely shows the glimmers of the princess inside.  But I assure you she is there.  She makes more appearances at weekends and school holidays and I know for sure she was there before we ever entered mainstream education.  I still love her with her gloves off, I just wish others could do too.  I would like to hope that there are still teaching staff out there ‘wanting’ to overcome the challenges with her.

I’m sure this is also part of her fascination with adopting new personas – she can pretend to be somebody new.  It’s merely a coping strategy.  She spent many months last year dressing up as Kevin from Home Alone or Dorothy from the Wizard of Oz – her learning journal opens with the name: Kevin.  The days when she adopts a character’s persona are often the times when she is at her most happiest.  She loves nothing more than camouflaging behind a false identity.  In costume she is able to let it go.

Back to Frozen and I will use Anna’s words as they resonate so deeply to a child with PDA.  We didn’t give up on Elsa, let’s not give up on kids who can’t control their emotions:

Please don’t shut me out again,

Please don’t slam the door

You don’t have to keep your distance anymore

‘Cause for the first time in forever,

I finally understand

For the first time in forever,

We can fix this hand in hand

We can head down this mountain together!

You don’t have to live in fear…

‘Cause for the first time in forever

I will be right here.

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7 comments

  1. Another brilliant piece, you write so well, every time I read your work it brings up so much emotion. It always feels like you’re writing about our lives too! These children have so much wisdom to give, we just need to make sure they’re not squashed during their young growing lives and can enable them to achieve their true potential. Unfortunately a bit of a rocky road… Looking forward to reading more xxx

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  2. Don’t let them in, don’t let them see, be the good girl you always have to be, conceal, don’t feel……….
    Applies to our kids and their masking…. 😟

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  3. Perfect, what a great way to try to explain to a kid that they’ve got a different perspective on the world. I always found explaining things to my daughter was easier when I could relate it to a character! I used to explain about shutting the fridge like the boy does in The Snowman and singing a song about saving water, to get her to switch off the tap, I think it was a song from the US children’s programme Barney.

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    • Thank you for your comments- it’s amazing how PDA children can be so similar. They are great tips as well (we have the tap one too!), using visual connections work for us. We had a stage of refusing toilets, it was so difficult and we watched videos on you tube about it so that seemed to gradually relieve it. We have to be so creative don’t we?! All the best to you and your family and thank you for reading x

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  4. Oh my I have goose bumps reading this! This is so our little man, he also changed his name to Kevin and was obsessed with home alone last year. When he learned to talk at age 3 he was peter, he dressed up as peter pan and wore that costume for nearly 2 years! Right now he is the child he sits beside in class, it takes him a while to snap out of that persona when he comes home form school, some nights he doesn’t those are the nights we don’t have meltdowns, when he does come back to himself all hell breaks lose. It’s awful. But because he is soooo good at it his teachers really think the school version on him is him! Thank you so much for writing this, our little man will talk very matter of fact to us about being this other child, but he would never tell anyone else. Maybe I can try and use this as a way for him to explain it? Xx

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